Our action research project Parents Together has highlighted the many different ways in which advocates can work to support families headed by a parent or parents with learning difficulties. At one time or another, often simultaneously, the following roles came to the fore.
Simply 'being there' is sometimes enough.
'Being there' is not about acting for parents, but about lending them authority.
Helping to absorb some of the pressures on the family.
Making sure the parents' side of the story is represented and their views are heard.
Helping to facilitate and improve liaison between the family, practitioners and the services.
Translating 'officialese' into language the parents can understand, explaining procedures and otherwise making information accessible to them.
Reducing parents' feelings of isolation by enabling them to share their worries, air their grievances or just talk things over.
Writing letters and helping with form-filling.
Helping parents to identify the choices they face in dealing with their problems, supporting them in their decisions, and ensuring that practitioners are alerted to options for helping the families they may have missed.
Sorting out problems of service delivery caused by poor coordination, errors, oversights or bureaucratic inertia.
Channelling the lessons learned in supporting one family for the benefit of another.
Encouraging families to have confidence in their own ability to cope by helping them to work things out for themselves.
Someone with whom private and confidential information can be safely shared sure in the knowledge it will not be passed on or used against the family.
Someone who is unambiguously on the family's side, prepared to stand by them, and whose actions are always consistent with this stance.
Tracking down and searching out information that will help parents achieve positive objectives.
Sharing knowledge and experience of life in the capacity of a supportive equal rather than an expert.
Keeping a look-out for the early signs of stress or changes in personal circumstances that might impact on the parents' capacity to cope.
Making things happen.